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Team building games on the first day of Camp Twitch. Most of the kids who come to camp have never met anyone else with TS before because it is such a rare disorder. Photo: www.tourettes.org.nz
Robyn Twemlow is the director of the Tourettes Association of New Zealand which she started after her daughter Analise was diagnosed with TS and found it almost impossible to find support.
She talks to Kathryn Ryan about the battle to get Tourette Syndrome supported within the health and education sectors as well as by the public; and is calling for it to be classified as a disability like it is in Australia, the UK, Canada and the US. Kathryn also talks to another parent Tracey Bain.